12 Comments

Crip time, that's a new one to me, but totally get it. So good you've done the intensive on your own terms, those of us with ME/CFS really do have to live in a different timescale x

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When I first heard the term Crip time I was so happy to finally have a name for how differently we experience time! That, and temporal accommodations, have really helped me set clear boundaries.

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This gives me hope. Thank you 🙏🏻❤️🙏🏻

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Ps .. the vagus nerve heart detail!!

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Thank you! I’m glad my writing gives you hope, and I just finished signing the vagus nerve piece this afternoon! After clean up I’ll write about the whole process.

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I am looking forward to that!!!

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Thank you for this thoughtful, reflective piece. You were so generous & precise in sharing your experience here & I saw myself in a lot of it. I suffered a head injury, post-concussion syndrome, & a myriad of other physical, emotional & cognitive ails post a motor vehicle accident 6yrs ago now. My nervous system crashed hard & it has been a slow, intentional recovery ever since. I So appreciate what you had to say about going at your own pace & putting your own health first. Also, the Polyvagal theory references!!! Deb Dana & Stephen Porges-😀Oh, and your needle point of the heart is exquisite.

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Thank you so much! I do think it’s important to talk about cognitive symptoms because so many people don’t understand them.

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I’ve never heard of the ventral vagal theory - finding visceral glimmers of calm - but I love it and know it’ll be something I chew on for a bit. 🩷

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If you want the neuroscience approach to polyvagal theory, look up Stephen Porges’ papers. He developed the theory. Deb Dana’s approach is softer and more based in talk therapy, and there’s a fantastic book by Stanley Rosenberg with all sorts of physical therapy exercises to do too.

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Just blown away by your embroidery, as always. I’ve really enjoyed Esmé’s classes, I’m also hoping to take more of them as I figure out this pacing thing.

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Thank you! I’ve been reading Esmé for years but haven’t taken any of her classes. Maybe in a few months I’ll delve into those! In the meantime I’ll finish The Visceral Self on my own timeline and then pay some attention to my own projects.

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